Response 233648424

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Contact details and publishing consent:

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McGhee
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(INDIVIDUALS ONLY) Are you:

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Person who uses/used a health or care service
Family carer of someone who uses/used a health or care service
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Member of the public with a general interest
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I have also used care services

Questions

1. Do you think that the new National Care Standards should be grounded in human rights?

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Comments
Make sure the rights are easy to understand - not like the Human Rights Act.....more like those already on the front of the current NCS

2a. Do you agree that overarching quality standards should be developed for all health and social care in Scotland?

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Comments
it is about time that health and social care services worked together with fundamental rights based approach underpinning their work, care and support to people

2b. Do you agree that the overarching quality standards should set out essential requirements based on human rights?

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2c. Do you agree that the current National Care Standards should be streamlined and a set of general standards developed that would sit below the overarching standards and apply to all services?

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Comments
make sure you keep these sucinct - perhaps cover distinct areas as suggested, but keep these minimal rather than lots of areas.

2d. Do you think general standards should set out essential requirements and aspirational elements?

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Comments
Make them both....but remember how they can be strengthened by regulators who can use them to enfource change.....I think they should be aspirational in that they constantly challenge the provider to review the delivery of care and support to ensure it constantly meets the needs and wishes of the people using their services. So they should be outcome based rather than inputs and process based. That way the provider constantly has to aspire to meet them....they can never simply tick a minimum standard box and sit back.

2e. Do you agree that a suite of specific standards are developed for particular aspects of care, circumstances or need?

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Comments
these could be more professionally based......but if at all possible written as outcomes too......They could cover things like the number and type of beds a care home should have (please no more massive institutions) they could look at care for children in domestic settings - people use childminders because they do not want Nursery type care - so these standards could flesh out specific areas

3a. What are your views on how standards should be written?

What are your views on how standards should be written?
They need to be user friendly. The current standards tell you what you can expect when using a service.....but also allow you to determine what that standard means to you to fit your own circumstances.....so for the provider they constantly challenge them to review the delivery of care and support they provide so that it always meets expectation (aspirational in nature). I prefer this to statements of rights ....as these seem less "alive". I agree it may be possible to combine these approaches - a statement of rights with an illustrated outcome for the person perhaps?

3b. What are your views on the example of how the rights and entitlements of people using services and the responsibilities of service providers could be set out?

What are your views on the example of how the rights and entitlements of people using services and the responsibilities of service providers could be set out?
see responce to 3a

4a. Do you think the Care Inspectorate and Healthcare Improvement Scotland should hold services they regulate to account for meeting the proposed overarching standards, the general standards and the suite of specific standards?

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Comments
I believe the Care Inspectorate have a legislative duty to use the NCS - this should continue and be applied to HIS too (if not already applied)

4b. How should we ensure that services not regulated by the Care Inspectorate and Health Improvement Scotland comply with the new standards?

How should we ensure that services not regulated by the Care Inspectorate and Health Improvement Scotland comply with the new standards?
Make sure everyone knows about them - social regulation can work if people (the public) know about the standards, demand services meet them and challenge or use other services when they do not. Social regulation can't work when choice is limmited (like Care Home provision ) hence we need regulation from organisations like the CI if choice is limmited (no market forces).

4c. We suggest that the Care Inspectorate and Healthcare Improvement Scotland, consulting with others, should develop the suite of specific standards. Do you agree with this?

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No
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Comments
as long as it is clear that they MUST consult when developing them

5a. Please tell us about any potential impacts, either positive or negative, you feel any of the proposals set out in this consultation paper may have on particular groups of people, with reference to the ‘protected characteristics’ listed above.

Please tell us about any potential impacts, either positive or negative, you feel any of the proposals set out in this consultation paper may have on particular groups of people, with reference to the ‘protected characteristics’ listed above.
sorry - I couldn't see the protected charectoristics you refered to "above" But I suspect impacts could be positive in that rights of people are raised, expectations of those rights are promoted, providers are challenged to meet these rights all the time. It will be important to invest in the launch so that everyone knows about and uses the standards - advertise them, direct providers to them - make sure they are "alive" ...not books that gather dust.

5b. Please tell us about any potential costs or savings that may occur as a result of the proposals set out in this consultation paper and any increase or reduction in the burden of regulation for any sector. Please be as specific as possible.

Please tell us about any potential costs or savings that may occur as a result of the proposals set out in this consultation paper and any increase or reduction in the burden of regulation for any sector. Please be as specific as possible.
I suspect that some services will be more challenged to consider ways to promote people's rights. However, self directed support and helping individuals use this may mean that people can have more control over their care.....However, good care, promoting rights of highly dependent people who may also be very vulnerable isn't easy OR inexpensive. Do we invest enough in our care system......I believe that the allocation of funds per person isn't always sufficient to provide good quality care and support - we need to invest more and value staff delivering that care - often on minimum wage, working in a sector that is only ever criticised - not praised by society.

6. Please tell us if there is anything else you wish us to consider in the review of the National Care Standards that is not covered eleswhere in the consultation paper.

Please tell us anything else about the NCS.
Write them as outcomes for people (as they currently are). Use the old ones to inform the new ones - what is common to the 23 sets - that might give you the core areas for the general ones that sit under the overarching ones. Don't always write them as standards that can be ticked, like room size or staff ratios (minimum standards) - make sure they challenge care and support provision to be tailored to each and every individual (that is aspirational in nature). Ensure legislation makes regulators and scrutiny bodies use them - at every level, so not just at service level but at strategic inspection level too. So what can individuals expect from a well commissioned service? And importantly invest heavily in advertising them, making everyone feel like they own them - let them be useful to people, empowering them to demand the best!