A national conversation to inform a new Dementia Strategy

Closed 5 Dec 2022

Opened 30 Sep 2022

Feedback updated 19 Oct 2023

We asked

With our National Dementia Lived Experience Panel and Strategic Advisory Group providing oversight and governance to the strategy development, we announced an open ‘National Conversation’ on dementia running from 30 September to 5 December 2022. The engagement approach is based around a small number of clear, open and easy to understand questions that allow people to offer their experiences.

You said

People who participated in our National Conversation focused on:

  • The need to change how we talk about dementia
  • The importance of community .
  • Policy into practice gap
  • The ‘postcode lottery’
  • Workforce issues
  • Education and training

This information was captured in a high level summary of 'What People Told Us'

We did

We developed these responses into a 10-year vision for change in our New Dementia Strategy for Scotland, as well as a summary document. Reflecting the inputs of our dementia communities (including the National Dementia Lived Experience Panel) and building on our world leading policy commitments, the Strategy sets out a long-term vision for change to meet the needs of people living with dementia, their families and their care partners:

Our vision is of a Scotland where people living with dementia and their care partners have their strengths recognised, their rights upheld, and are supported to live an independent life, free from stigma and with person centred treatment, support and care when and where they need it. 

It identifies a number of areas where we will focus our attention to improve the lives of people living with dementia, their families and care partners. This includes:

  • Recognising dementia as a condition of the brain that affects the whole person, while upscaling efforts to address its mental health and wellbeing impacts
  • Ensuring services and supports are dementia-inclusive and create environments which enable people with dementia to live their best possible life
  • Delivering equity of access to information, treatment, care and support for people living with dementia
  • Upholding a person’s human rights throughout their dementia journey
  • Ensuring people are supported by a skilled, knowledgeable and trauma-informed workforce.

We look forward to delivering on the Strategy’s ambitions in subsequent delivery plans, the first of which we will publish in early 2024.

Results updated 19 Oct 2023

The responses to the consultation were analysed, with a high level summary of 'What People Told Us' produced. All of these contributed to our 10-year vision for change, Everyone's Story: A New Dementia Startegy for Scotland


Published responses

View submitted responses where consent has been given to publish the response.


We want a national conversation with everyone interested in what a new Dementia Strategy for Scotland should look like.

To help inform your response, we have put together a short discusssion paper. Please read this before responding.

We have also created an audio version of this document to ensure this Conversation is accessible to a wide range of communities.

This platform enables a written response, but we will also hold online discussions, which you can sign up for below. We are also keen for opportunities to meet in-person with you and your communities, so please get in touch.

Why your views matter

To be able to tell a 'new story' for dementia policy, we need the widest possible range of views from everyone with an interest in the lives of people living with dementia.

We want this to be as open as possible, and your responses will enable us to develop a Strategy that covers all aspects of life for someone with this condition.

To submit a written response, click the 'Respond to our National Conversation here' button below. 

If you would like to submit your repsonse in a different format, please get in touch with the Dementia Policy Unit for further details.

What happens next

All responses will be collated and analysed.

We will continue to engage with interested people, groups and organisations prior to and following the publication of the Strategy on how we can deliver on its proposed outcomes.

We will also work with our National Dementia Lived Experience Panel to develop responses into a fully-formed, outcomes focused Strategy. Our target date for publication is April 2023.


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