Organ transplant aftercare and support: survey

Overview

In March 2021, the Scottish Government published its Donation and Transplantation Plan for Scotland: 2021-2026. The Plan was developed with members of the Scottish Donation and Transplant Group (SDTG) and sets out recommendations in seven key priority areas.  One of the key priorities is Transplant Recipient Support and Aftercare. This survey has been developed by a Working Group of the SDTG and aims to capture an up-to-date picture of patients’ views on transplant services in Scotland.

NHS National Services Division (NSD) commissions transplant services for people who live in Scotland. In 2020, a patient survey conducted by NSD identified a number of areas where the patient’s experience could be improved. These include communication between transplant units, local specialists, GPs and patients; the availability of information and advice; and access to emotional and psychological support for patients and their families.

During the pandemic, many services adopted new ways of seeing patients, offering remote monitoring and remote/online consultations. While this reduced the need to travel to hospital appointments, it is important to explore the impact of these changes on transplant patients.

Read the participation information sheet (pdf)

Why your views matter

Patient feedback is essential to ensure services are meeting the needs of their patients. We are undertaking this survey to seek the views of recipients of a solid organ transplant(s) about transplant services provided for patients living in Scotland, including any areas for improvement, and their experience of engaging with transplant services. 

Therefore please only complete this survey if you live in Scotland and have had a transplant, or you can also complete it on behalf of someone (such as a family member) who has had a transplant, but is not able to complete the survey themselves.

The survey responses will help to identify areas where services for patients can be improved and drive service improvement.

Please answer the questions based on your own experience, or if you are answering on someone else’s behalf, on their experience of having an organ transplant. If you have received more than one solid organ transplant, please complete one survey for each transplant experience.

The survey is likely to require about 10 - 15 minutes to complete.

Thank you for taking part in this survey on behalf of the Scottish Donation and Transplant Group.

What happens next

We will produce a report outlining the findings from the survey which will be shared with the Scottish Donation & Transplant Group and with Transplant Units.  We do not intend to include any individual survey responses in the report; particular comments or suggestions may be included, but this will be done in a way that ensures no individuals can be identified from their comments.